1. Educational Resources:
Websites:
Lipedema Foundation
A well-established nonprofit organization dedicated to raising awareness and funding research. Provides educational resources, patient stories, and updates on treatment options.
Fat Disorders Resource Society (FDRS)
Offers a variety of resources on lipedema, including webinars, research, treatment guidelines, and upcoming events.
Lymphedema & Lipedema Nutrition Guide
This resource focuses on the importance of diet in managing lipedema and provides nutrition tips to reduce inflammation and support lymphatic health.
Lipedema Simplified
Provides videos, courses, and podcasts from experts on managing lipedema, with a focus on holistic approaches like diet and exercise.
Videos:
Lipedema Simplified YouTube Channel
Offers interviews with leading experts, personal stories, and practical advice on managing lipedema.
A ton of videos and playlists that are helpful for all things lymphatic. Search lipedema for her specific videos.
2. Compression Therapy Resources:
Juzo Compression
Offers a range of compression garments specifically designed for managing lipedema and lymphedema. Their website includes a compression guide and product information.
Lymphedema Products
Provides a variety of compression garments, wraps, and other products for lymphatic and lipedema care. Also has educational resources on how to measure for and use compression.
Medi USA Compression
Offers a range of compression products, including stockings, sleeves, and wraps designed for lipedema and lymphedema management. They also provide helpful tutorials and guides.
3. Pneumatic Compression Device Information:
Pneumatic compression devices are often recommended for people with lipedema or lymphedema to help stimulate lymphatic flow, reduce swelling, and manage fibrosis. Below are some excellent resources that explain what they are, how they work, and their benefits.
Lympha Press
Leading provider of pneumatic compression devices designed for lipedema and lymphedema patients. Their website includes detailed product information and research articles on how these devices support lymphatic health.
Flexitouch System by Tactile Medical
Pneumatic compression devices designed for home use in treating both lymphedema and lipedema. Provides instructional videos and patient testimonials.
Veldana Health
Supplier of high-quality pneumatic compression devices with a focus on user comfort and portability. They also offer consultations and support for finding the right device.
Normatec
Not medical grade but designed for lymphedema (just used by athletes and influences a lot). More affordable option if you don't go the route for insurance.
Advice: The cheap ones on amazon might seem great, but not all are made to pump and move lymph. There is some merit to getting a good quality one with the right design, pressure and programming.
4. Online Support Groups and Forums:
Lipedema Fitness Facebook Group
A supportive online community for people with lipedema who are looking to maintain an active lifestyle. Members share workout tips, diet suggestions, and offer emotional support.
Lipedema Sisters USA (Private Facebook Group)
A large community for women with lipedema to share experiences, treatments, and resources. Great for connecting with others and learning about new developments in care.
Lipedema and Lymphedema Support Group (LLSG)
This group offers a wealth of information for people dealing with both conditions, providing guidance on managing symptoms, sharing experiences, and finding specialists.
5. Exercise and Movement Resources:
Lipedema Fitness
A resource for safe, low-impact exercises tailored for individuals with lipedema. Offers training plans, fitness tips, and recovery guidance.
6. Podcasts about Lipedema:
Lipedema Podcast: Hosted by Lipedema Simplified, this podcast offers in-depth interviews with medical professionals, patient stories, and practical advice on managing lipedema through diet, lifestyle changes, and emotional wellness. It’s a great resource for learning about the latest research and treatments.Lipedema Podcast
Living Well with Lipedema: A podcast created by the Lipedema Project that shares insights on managing lipedema, interviews with leading experts, and discussions on treatment options including non-surgical and surgical interventions.Living Well with Lipedema Podcast
Lipedema Lady Talks: Focuses on living with lipedema and related conditions like lymphedema, featuring guest speakers, personal stories, and tips for thriving while managing a chronic illness.Available on Spotify and Apple Podcasts.
Lipedema Mamas Podcast: A platform where hosts Shawn and Ashley share experiences and information on living with lipedema. They have a ton of guests on the show who are experts in the field.
Lipedema Link: Hosted by Don-Ellen Ray, this podcast connects individuals navigating the challenges of lipedema through expert insights and personal stories.
7. Self Manual Lymphatic Drainage:
Scroll to the bottom of the page for access. These are made by one of the top MLD schools and geared towards lymphedema. Just keep in mind generally with lipedema you do not have compromised drainage pathways, so you can drain to the closest lymph nodes.
8. Find a Lipedema Specialist:
This is a great resources for learning what to look for and a ton of links on places to look.
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